explaining study derived data usage to participant candidate
Asiyah Yu Lin, Yongqun He
For example, in the genomic data projects, the study subject's sequence data maybe used outside of the original organization. In this case, the study subject's privacy need to be protected.
In the case of promoting future data sharing, the usage of the data derived from a study is to be explained to the candidate.
This class is under group discussion as of 03/26/2019.
explaining to participant candidate in informed consent process